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two days to the future March 16, 2008

Posted by PAS in cancer, survivorship.
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It’s been two years since I’ve had to go through pre-op testing…but starting Monday, I get to relive it all over again.

New doctors.
A couple of doctors I’ve seen too many times before.

Pre-op tests are grueling. Appointment after appointment from the hospital to 53rd St. and back again–all the while wondering what will come next, what they are going to say, what procedures they have planned, and will you make it to the next doc’s office on time. By the end of the day, I will need the St. Patrick’s Day parade.

The cancer is now labeled ‘locally advanced’…I think. I don’t know for sure; I just have the substitute nurse’s read of the scans I had during Westminster weekend. She said It’s gone from a small targeted tumor at the original incision site to something that may involve my cervix and left ureter. The pre-op docs will clarify Monday and Tuesday; it’s one of my big questions.

Meanwhile, if I think about it for too long, I won’t be able to function at all. The surgery is scary enough. I don’t want to do more chemo.

So, I get to meet with a gyn oncologist who is the director of reconstructive surgery in his department, and a radiation oncologist who is going to do interoperative radiation during the surgery, and a urologic oncologist who is going to try to preserve uretral and kidney function while they remove the tumor.

And I get to meet with some docs who already know me–the medical internist who clears me for surgery and Weiser, the colorectal surgeon who did my initial surgery. And I get to find out what I will look like after all of this is done.

I made six copies of my latest reports and my doctor contacts, surgical-chemo-rad history and contact information. I am packing light to do two days in NYC on the fast track as I bounce in and out of entrances at MSKCC, on and off the 6 train to 53rd St. I am a little scared.

But I am also here, today, doing what I want to do, and I’ve been given that chance for two years longer than anyone thought I’d have. Tonight I will sleep with my dogs and tomorrow I will write training programs while I’m on the late train to NYC.

And Monday, the docs will begin coloring in my near future.
Fingers crossed.

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Comments

1. Anonymous - March 16, 2008

I just wanted to wish you all the best.

I’ve read many of your posts on the Protein Power forum and you seem like a very kind and strong person.

I’ll look forward to seeing more of your valuable contributions once you overcome this next challenge.

I hope that will be very soon.

Be well. 🙂

2. OddAngelCharon - April 4, 2008

My best to you as well.

I read you on the PP forums and now here I see you’re a teardrop and travel trailer fan. I’m a TCT member who spends about 1/2 the year on the road in a 1966 Airstream Safari.

I’ll be adding your blog to my reading list via RSS and hope to keep in touch.

Thanks for all that you contribute to your internet communities!

3. LisaS - April 15, 2008

Gaelen – it’s been nearly a month since an update. Love to hear how you’re doing. If you don’t feel like it, know that you remain in my prayers.
LisaS


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