Amuse my tastebuds, please! November 12, 2009
Posted by gaelenscafe in cancer, food, nutrition, survivorship.Tags: Bobby Flay, Mollie Katzen, Moosewood Cookbook
3 comments
amuse-bouche [a.myz.buʃ] a single, bite-sized hors d’œuvre. … These, often accompanied by a complementing wine, are served as an excitement of taste buds to both prepare the guest for the meal and to offer a glimpse into the chef’s approach to cooking.
I’m a self-professed foodie – a person who reads my 300+ cookbooks like novels, creates new recipes based on favorite tastes, prepares a dish over and over until I get the taste(s) right, treasures memories like the special lunch I enjoyed at Bolo in NYC, one of Bobby Flay’s first restaurants (now closed.) My tiny kitchen’s cabinets are covered with 25 years of state fair culinary competition ribbons. For me, the amuse-bouche – that single mouthful that sings with taste – is my cooking goal every time I sharpen my chef’s knife.
The first thing the nurses warned me about in chemo teaching is that my tastes would change while on chemo, food and smells might make me nauseaus, and patients were often unable to eat their favorite things because the medicine(s) changed their taste preferences so dramatically. Every chemo is a bit different, but palate-numbing is a common denominator.
While I was on chemo, my tastebuds went on strike. On the day of an infusion, I craved – watermelon. Lemon. Taco Bell. Seriously, Taco Bell. Good Mexican food was wasted on me, but the heavily salted stuff from borderline drive-thru tasted wonderful, complete with fast-food guacamole and pico de gallo. Not fresh, not organic, not seasonal. But I could *taste* it. I’m not proud to admit that a cheap beef taco was often the last real food I could manage before the chemo nausea kicked in. Days 2-14 after infusion, I had the appetite of a finicky toddler. Smells of fresh, raw or cooking food might make me hungry, or make me sick. It could literally go either way. During those days, I did find some solace in my 70s comfort food: Cauliflower Soup from Mollie Katzen’s Moosewood Cookbook, Garlic Broth from Anna Thomas’s Vegetarian Epicure, and homemade pierogies from my friend Kim, or from the ladies auxiliary at the Ukranian Church got me through those days.
When chemo ended, my tastebuds limped across the chemo picket line – and some of them had clearly developed attitude problems. Spicy foods threw them into revolt. Salt levels were hit or miss. Sour tastes, fresh fruit, and creamy vegetable tasted usually tasted good – but not always. Lemon, which I don’t love, always worked during chemo and continued to work when it was over. Salmon, a pre-chemo mainstay, tasted too strong now, but smoked salmon was terrific Pepper became critical in every dish. After the end of each chemo regimen, it took me months to get back the palate sensitivity on which I’d always depended.
I examined some cancer cookbooks during treatment, but all were uniformly disappointing. I know how to make ingredients sing, make them amuse my tastebuds and incite my appetite – but the smells of cooking and the handling of raw foods often made me ill. I used a lot of premade and frozen foods while on chemo, but wondered how other patients handled the utter lack of taste in most of those cancer ‘cookbooks.’
What I would have given for a copy of One Bite at a Time, Rebecca Katz’s amazing cookbook subtitled ‘Nourishing Recipes for Cancer Survivors and Their Friends.’
If you only make one of the 20 soups Katz includes in this cookbook, it will have paid for itself. A beautiful, simple and basic vegetable stock called Magic Mineral Broth (TM) will add magic to any soup, vegetable, rice, pasta or grain where it’s used. Other recipes include Carmelized Red Onion soup; Taxicab Yellow Tomato Soup with Pesto – I could go on, but these are recipes you should discover for yourself. If you’d like a taste, check here for Katz’s online recipe selection. It includes another of my favorites from One Bite at a Time – Flourless Almond Tortes.
Food on chemo can be a challenge for both the patients and caregivers – but the recipes in Katz’s book are real food designed to deliver high taste and high nutrient value. You don’t need to have cancer to need that. Enjoy!
What was your favorite food during chemo? C’mon, admit it. After all – I admitted to Taco Bell cravings…how much worse could your craving be?
Reality checks come in threes November 8, 2009
Posted by gaelenscafe in survivorship.Tags: cancer, survivorship
4 comments
When the reality (and eventual finality) of a stage IV diagnosis comes calling, it just keeps ringing the doorbell.
I started my morning by reading Kairol Rosenthal’s latest post on Everything Changes – where she asked readers if cancer had ever intruded into their private spaces. That led me to Alli’s blog, RedHeaded Bald Chic, where she wrote about the heart-breaking realization that she can no longer safely care for herself. She is sacrificing her independence to the progression of her ovarian cancer. She’s moving back into her parents’ home, into the bedroom she had as a girl, until her cancer means she can no longer climb stairs and needs the reality of a hospital bed on the first floor. Check.
Next, I checked forums – on Colon Talk someone let us know there was a new entry in Joe’s blog, where he’d left an update about his wife L, a stage IV rectal cancer patient with advanced mets who went into hospice care a couple weeks ago. L’s body systems are shutting down, but she is still in terrible pain and raging against dying. The hospice workers suggested that her inability to accept her reality, to accept that her body can’t keep up with her desire to live beyond her diagnosis is making it harder to control her pain, making these last days more difficult. Fighting reality is making it harder for them to help her. Check.
Finally, I popped into MyCRCconnections – although I’m a CCA buddy, I can’t access that site at work so I only read the whole board on the weekends. Catching up, I saw a thread started two days ago by a woman who has decided to stop chemo until after the first of the year. Her latest chemo regimen (her third) is taking more out of her than she can handle, more bad days than good days. She wants to spend the holidays with her family and take some vacation time with her husband and she wants to do those things away from the haze of chemo. Her doctors have told her that, since she’s out of drugs, they have no other options for treatments. If she progresses on this one as she has on all of the previous chemos, then at best she’ll have a few months. She’s struggling with her wish to have as much time with her family as possible.
Her thread was maybe the hardest of the reality checks. Two years and change ago, she found TheSemiColonClub, a yahoo! group I moderate for colorectal cancer survivors – newly diagnosed and confused, searching for reasons why and desperately convinced that she would do the chemo for her stage III diagnosis and be able to continue her life as if she’d never had cancer. Was it diet that did her in? Lack of exercise? She resolved to do both. I remember once she asked about her chances for progressing to stage IV, and we talked about the stats, about the fact that not everyone in stage IV dies the year they’re diagnosed, and not everyone is stage IV when they die.
Then she had the first recurrence, and the second. Now she’s out of drugs, and almost out of choices – and staring hard at reality. Check.
As every scan approaches, I check in with the reality that cancer could come back, that my day-to-day reality of remission could end at any moment and move into the reality of a cancer patient dealing with active disease – again. Every scan could color that picture in more clearly, making it easier to see the pitfalls and the rough road ahead. I can’t think about the course of the road every minute, but I’m always traveling it, and the reality checks in the world around me only make the road more certain. Because despite the work and the plans and the projects, the training classes and the dog shows, reality can change in a heartbeat. It’s unemotional, unpredictable, impartial, unforgiving, intolerant, impatient.
Reality.
Check.
Every step makes a difference! November 1, 2009
Posted by gaelenscafe in cancer, research, survivorship, the 'net.Tags: Blog-4-Cause, cancer, Cancer research, ebook, Susan G. Komen for the Cure, Yoga Bear
10 comments
A few weeks ago, in an effort to improve my blogs I joined www.problogger.com. I know that the tips and tricks I’ve picked up so far are improving my blogging – who knows, maybe someday I’ll even move my blog(s) to their own domains!
One of the things I really enjoy about the blogging community is that I’m always finding opportunities where my blogging can make a difference. I’ve blogged here to support Yoga Bear and tweeted to support Cancer and Careers – two organizations who give direct, real-time support to cancer survivors, support which makes their days easier. The most recent opportunity was a call for bloggers to help compile an ebook designed to benefit the Susan G. Komen Foundation and raise funds and awareness for breast cancer research and support.
Yeah – I know. I don’t have breast cancer; I have rectal cancer…and we have our own awareness and funding issues. But at the end of the day, I’m a woman. I have breasts. I have cousins and an aunt who’ve had breast cancer, and one of my cousins died of recurrent BC. I work in pre-clinical research, helping to make cancer drugs – and in the vivarium, drugs don’t wear single-color awarenss ribbons. Drugs that work on some kinds of cancer often become candidates for treatment regimens in other types – and every step forward makes a difference for all types of cancers.
I submitted one of my favorite posts, “The (reluctant) cancer warrior,” — and I’m proud to announce that it was accepted and appears in the Blog4Cause ebook produced by Lance Ekum (@lance02) and Joanna Sutter (@joannasutter), authors of the Journey of Life and Fitness & Spice blogs, respectively.
Every donation, large and small, to the Komen Foundation from the targeted Blog4Cause page gives the donor a download key to the ebook Ekum and Sutter compiled. Even more important, the ebook puts survivors’ perspectives in the hands of even more people. Through this effort, awareness about and understanding of living with cancer will reach a new audience. I’m very proud to have been accepted in Blog4Cause’s effort – and very happy that by doing something I enjoy, I can do a little good.
Ekum and Sutter’s effort also stirred up some sleeping marketing and PR skills, has me thinking that there’s ebook potential out here to raise year-round awareness about colorectal cancer.
Bloggers and friends – would you be up for a similar effort targeted as a colorectal cancer awareness/fund-raising effort? Take a look at your best posts (or write up a new one) and let me know!

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